Named Patient Programs

Just Announced Programs


Programs by Type

Alveolar Soft Part Sarcoma

Julia Ann Harmon 
ASPS/Sarcoma Patient Advocacy Program

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Appendix Cancer

The Paul Adam
Appendix Cancer Survivors Program

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Bladder Cancer

John H. Palestrini
Cancer Patient Advocacy Program

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Brain Cancer

The Nawras Jirjees
Patient Advocacy Program

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Emma Jean Jones 
Astrocytoma Patient Advocacy Program

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Claire Nelson 
Brain Tumor Program

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Patrick J. Stevens 
Patient Advocacy Program

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The Bailey Tra
Research Advocacy Program

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Robyne Wexler 
GBM/Brain Cancer Program

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Breast Cancer

The ICAN Breast Cancer Reconstruction Project

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Barbara Alberts
Breast Cancer Advocacy Program

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Jacqueline ("Jax") Arcaris
Inflammatory Breast Cancer Program

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Shari H. Baker
Breast Cancer Survivors Program

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Momotaj ("Kanon") Mohol Begum
Breast Cancer Advocacy Program (Bangladesh)

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Mary Lou Climo 
Breast Cancer Clinical Trials Advocacy Program 
(Clinical Trials Enrollment Issues)

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Kay T. DeMichele
Breast Cancer Patient Advocacy Program 
(Stage IV patients)

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The Hemangi Dhavale-Mahabaleshwarkar
Breast Cancer Clinical Trials Program

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Elaine L. Foreman 
Breast Cancer Patient Advocacy Program 
(Newly-Diagnosed Patients)

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Joni Gottlieb 
Breast Cancer Survivors Program 
(Patient Empowerment Tools)

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Rivka Matitya
Breast Cancer Program

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Ann Heard Niewold 
Breast Cancer Clinical Trials Advocacy Program (Caregivers Issues)

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Siminya Nix
Clinical Trials Advocacy Program

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Susan E. Peretz
Breast Cancer Patient Advocacy Program 
(Liver Metastasis Issues)

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Kae Robb 
Breast Cancer Clinical Trials Advocacy Program 
(Her2 Positive Patients)

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Donna Sanders
The Donna Sanders Patient Advocacy Program

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Kenneth Strong 
Cancer Patient Advocacy Program

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Sylvia Vizcaya-Alderson 
Breast Cancer Program
(Bone Metastasis Issues)

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The Ava Lynette Weinstein
HER2 Positive Breast Cancer Program

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Joan Marie Wells 
Breast Cancer Patient Advocacy Program 
(Lung Metastasis Issues)

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Katie Engler Winter
Breast Cancer Clinical Trials Program

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Cancer Research Programs

Patricia A. Berardi
Gallbladder Cancer Research Program

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Jane Keene Bixler
Cancer of Unknown Primary Program

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Donald Henry Cameron 
Novel Therapeutics Program

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Jerome Jay Graves
Cardiovascular Research Program

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Uri Harel
Therapeutic Arts Program

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Mimi Martin 
Molecular Profiling Program

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Elaine Michael-Price 
Cancer Patient Advocacy Program

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Michael Mularevich 
Research Program

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Leatrice J. Nach 
Scientific Writing Program

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John H. Palestrini 
Cancer Patient Advocacy Program

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Robert W. Reimer
Biomarkers Research Center Project

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Arie Ringelstein 
Cancer Research Program

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Tom Tyne
Cancer Research Program

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Stacey Titens Wizig 
Cancer Research Program

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Cancer of Unknown Primary

Jane Keene Bixler
Cancer of Unknown Primary Program

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William F. Buck IV
Cancer Research Program 

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Carcinoid

Janice D. Isbell
Carcinoid Patient Advocacy and 
Clinical Trials Advocacy Program

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Caregivers

Nora Lee Gregory
Caregivers Advocacy Program

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Cervical Cancer

Dana Michelle Adler
Cervical Cancer Patient Advocacy Program

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Carliser M. Rodriquez 
Gynecologic Oncology Biomarkers Program

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Cholangiocarcinoma

Kairi Toll
Angels Program

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Clinical Trials

Willard (Bill) Fisher
Pancreatic Clinical Trials Advocacy Program

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Sylvia Koritan
Clinical Trials Advocacy Program

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M. Kathleen McClellan
Gynecologic Cancer Clinical Trials Program

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The Eileen Nakano
Vaccine and Immunotherapy Clinical Trials Program

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Colon Cancer

Jahangir Afsharinasab
Cancer Patient Advocacy Program

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Abelhadi Mustafa Amawi
Colon Cancer Program

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Antony ("Tony") Brewster Brown, Jr.
Colon Cancer Biomarkers Program

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LaDonna Jean Courtney 
Colorectal Cancer Clinical Trials Advocacy Program 

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Lavina Dawson 
Clinical Trials Advocacy Program 
(Newly-Diagnosed Patients and Cancer Survivors)

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Lisa Dubow 
Colorectal Cancer Patient Advocacy Program 
(Clinical Trials)

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The Allan J. Flader
Research Advocacy Program at ICAN

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The Thaddeus Jones
Complementary Therapies Advocacy Program

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Gean Marchant Howard
Patient Advocacy Program

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The Gary Howell
Spiritual Counseling Program

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Andy Hurwitz
Guiding Light Program

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The Eileen Nakano
Vaccine and Immunotherapy Clinical Trials Program

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The Nhan Phu Nguyen
Research Advocacy Program

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Rick Oertel 
Cancer Patient Advocacy Program 
(Colorectal Cancer Biomarkers) 

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Rhoda Schneider 
Colorectal Cancer Patient Advocacy Program 
(Pain Management Issues)

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Dan Smith
Therapeutic Pathways Program

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Thomas M. Suglio 
Colorectal Cancer Patient Advocacy Program 
(Stage IV Patients)

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Phyllis Tuccori
Cancer Patient Advocacy Program

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Compassionate Use

The Andrew Cooke
Rare Lung Cancer Compassionate Use Program

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Muriel Finlayson Williams 
Compassionate Use Drug Information Program

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Esophageal Cancer

Edwin Chesler 
Esophageal Cancer Patient Advocacy Program 

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The Robert S. Emerson
Esophageal Cancer Patient Advocacy Program

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Lane T. Nielson 
Esophageal Cancer Clinical Trials Advocacy Program

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Ted Rogers
Advocacy Program and Speakers' Bureau

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Bob Rosenberg 
Interventional Radiology Program

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Gallbladder Cancer

Patricia A. Berardi 
Gallbladder Cancer Research Program 

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The Solien P. Quino
Patient Advocacy Program

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Gastric Cancer

The Larry Reed Guthrie
Rare Cancers Program

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Harmony Melynchuk 
Gastric Cancer Patient Advocacy Program 

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Arie Ringelstein 
Cancer Research Program

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Gastrointestinal Cancers

The Adam Alabata Sanborn
Rare Gastrointestinal Cancers Program at ICAN

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Genitourinary Cancers

John H. Palestrini 
Cancer Patient Advocacy Program

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Helen ("Peggy") Hoidale Parker
Cancer Patient Advocacy Program 

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Earl E. Weeks 
Cancer Patient Advocacy Program and 
Clinical Trials Advocacy Program 

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Gynecologic Cancers

M. Kathleen McClellan
Gynecologic Cancer Clinical Trials Program

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Yafa Zur
International Cancer Patients Program

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Head and Neck Cancers

Michael J. Frisby 
Cancer Patient Advocacy Program

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The Michael Lee Romero
Patient Advocacy Program

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Babette "Batya" Rosen 
Squamous Cell Carcinoma of the Head and Neck 
Clinical Trials Advocacy Program 
(Stage IV Patients)

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Christopher I. Tweeton 
Head and Neck Cancer 
Patient Advocacy Program
(Newly-Diagnosed Patients) 

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Tom Tyne
Cancer Research Program

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Health Equity Programs

Migdalia C. Hernandez 
Cancer Patient Advocacy Program 
(Indigent Patients) 

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Hematological Malignancies

The Brian Allman
Diffuse Large B Cell Lymphoma (DLBCL) Novel Therapeutics Program

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Kye Carpenter-Mark
Pediatric AML Program

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Thad Delos Duel 
Patient Advocacy Program and 
Public Education Program 
(Differential Diagnosis Issues)

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Louis Fanoun 
Hodgkin's Lymphoma Program 

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Felipe Gonzalez, M.D. 
Leukemia Clinical Trials Advocacy Program

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William Herron Hall
Rare Lymphoma Program

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Ognjen ("Ogi") Kovacevic 
T-Cell Lymphoblastic Lymphoma/ALL 
Patient Advocacy Program

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Shirley Morrison 
Lymphoma Patient Advocacy Program

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Nancy Strauss 
Hematological Cancer Patient Advocacy Program

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Hodgkin's Lymphoma

Louis Fanoun 
Hodgkin's Lymphoma Program 

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Immunotherapy

Nick J. Milazzo
Immunotherapy Program

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The Eileen Nakano
Vaccine and Immunotherapy Clinical Trials Program

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Interventional Radiology

Bob Rosenberg 
Interventional Radiology Program

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Kidney/Renal Cell Carcinoma

Leslie F. Bell
Renal Cell Carcinoma Clinical Trials Program

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Robert Jones 
Kidney Cancer Patient Advocacy Program 
(Newly-Diagnosed Patients) 

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Arnold N. Schechter 
Renal Cell Carcinoma Patient Advocacy Program
(Metastasis Issues) 

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Leiomyosarcoma

Gertrude Rosen 
Leiomyosarcoma Patient Advocacy Program

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Leukemia

Kye Carpenter-Mark
Pediatric AML Program

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Felipe Gonzalez, M.D. 
Leukemia Clinical Trials Advocacy Program

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Nancy Strauss 
Hematological Cancer Patient Advocacy Program

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Liver Cancer

Helen Jodice 
Liver-Directed Therapies Program

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Oliver Perry 
Liver Cancer Patient Advocacy Program

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Lung Cancer

Craig Wacknov Allan
Cancer Patient Advocacy Program

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Gary M. Avey 
Cancer Patient Advocacy Program for Native Peoples

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The Daniel Begg
Lung Cancer Molecular Diagnostics Program

The Janet Elisabeth Peña Bell-Taylor
Angel Buddies Program

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The Dr. Gaymon L. Bennett, Jr.
Research Advocacy Program

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The Marcia M. Berns
Patient Advocacy Program

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The Martell and Katina Bland
Patient Education Program

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Kellie Gearinger Brown
Program at ICAN

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Donald Henry Cameron 
Novel Therapeutics Program

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The Thomas James Carney
Research Advocacy Program

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The Karen Cheng
Advocacy Program

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The Close Program
For Familial Lung Cancers

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Lawrence M. Cohen 
Clinical Trials Advocacy Program

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The Chris Commerford 
HER2 Targeted Therapies Program

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Barbara Cussler 
Lung Cancer Patient Advocacy Program
(Newly-Diagnosed Patients)

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The Nina Devito Novel Therapeutics Program of Canada

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Brenda Diener 
Lung Cancer Biomarkers Program

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Zhicai Du
Advocacy Program

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The Barbara El-Arabi-Dietz
Research Advocacy Program

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The Bobbi Johnson Filipiak
Patient Communication Program

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Wendy Gelber 
Lung Cancer Research Program

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The Elena Gershanov
Patient Access Program

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The Natasha Olson Girard
Young Adults Program

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Jerome Jay Graves
Cardiovascular Research Program

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The Bryan K. Guidizi
Lung Cancer Program

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The Kevin M. Hanlon
Clinical Trials Program

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The Jodi Harris
Early Detection Program

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Carol and Michael Hearons 
Family Advocacy Program

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The Paul and Susan Hutter
Advocacy Program

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The Karen Hutton
Neurosciences Program at ICAN

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The Sherman Willis Johnson
Ambassadors Program

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The Liza Jones
Patient Advocacy Program

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Judy Joseph
Palliative Care Program

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The Dr. Sharlyn Kang
Radiation Oncology Program at ICAN

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The Matthew Ross Katz
Research Advocacy Program

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The Rahat Khanna
Compassionate Use Program

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The Barbara Catone King
Research Advocacy Program

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The Cheryl Silver Kitchner
Advocacy Program

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The Darlene Kratz
Advocacy Program

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The JoEllen Ku
Research Advocacy Program

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The Louise Kuchel
Clinical Trials Advocacy Program

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The Miles for Marc
Exon 20 Advocacy Program

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Brigitte Lavigne
Research Advocacy Program (Rare Mutations)

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The Michael Leung
Patient Advocacy Program

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The Michelle Li
Angel Buddies Program

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Philip Eric Lindquist
Program for Targeted Therapies

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The Hae-Yin Loke
Physician-Patient Communications Program

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The Brian Lynch
Patient Advocacy Program

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Mimi Martin 
Molecular Profiling Program

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The Dr. Nalin Nag
Lung Cancer Rare Mutations Clinical Trials Program

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The Irene Ng
Patient Advocacy Program

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Fred Runnels Padgett 
Lung Cancer Patient Advocacy Program

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The Jose M. Parracho
Advocacy Program

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The Rupali Patil
Clinical Trials Advocacy Program

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The Jon W. Phillips
Patient Journal Program

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Maureen Purdy-Aramino 
Lung Cancer Clinical Trials Advocacy Program

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Sandra L. Queli 
Lung Cancer Patient Advocacy Program

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The Venkat Ramalingam
Research Advocacy Program

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The Leslie Rosenberg
Research Advocacy Fund

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The Robert Schlosser
Rare Mutation Lung Cancers Program

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Mark Shames
Research Advocacy Program

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Hilary Martindale Shaw
International Patients Program

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The Jack Shinn
Patient Advocacy Program

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The Elena Siltanen
Pharmacy Advocacy Program

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The Diane Skinner
Research Advocacy Program

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The Danielle Slagle
Family Advocacy Program

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The Michael Suesserman
Research Advocacy Program

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The Andrew Sussman
Research Advocacy Program

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The Christine Takahashi
Research Advocacy Program at ICAN

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Stephen M. Taft
Advocacy Program at ICAN

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The Juan Urbano
Rare Lung Cancer Mutations Program

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The Yi-Ting Wei
Advocacy Program

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The Julie Woodington
Patient Advocacy Program

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The Yiqing Zhou
Patient and Research Advocacy Program

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Lymphoma

The Brian Allman
Diffuse Large B Cell Lymphoma (DLBCL) Novel Therapeutics Program

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William Herron Hall
Rare Lymphoma Program

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Ognjen ("Ogi") Kovacevic 
T-Cell Lymphoblastic Lymphoma/ALL 
Patient Advocacy Program

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Shirley Morrison 
Lymphoma Patient Advocacy Program

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Nancy Strauss 
Hematological Cancer Patient Advocacy Program

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Melanoma

Raymond DiPerna
Melanoma Program

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Mary Ann Granger-Alderson 
Clinical Trials Advocacy Program

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Robert W. Reimer
Biomarkers Research Center Project

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Loryn Simone 
Melanoma Patient Advocacy Program 
(Newly-Diagnosed Patients)

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Mesothelioma

Mesothelioma
Patient Advocacy Program

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Multiple Myeloma

R. Neil Barnes 
Multiple Myeloma Program

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Judith and Martin Gang 
Multiple Myeloma Patient Advocacy Program

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Barbara K. MacDonald
Multiple Myeloma Clinical Trials Program

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Neuroblastoma

Stella Demarco
Neuroblastoma Program

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Ovarian Cancer

Marilyn Fagan 
Ovarian Cancer Patient Advocacy Program

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Emily Stone Fail 
Ovarian Cancer Patient Advocacy Program

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Pearl Haymes
Personalized Medicine Program

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Joyce F. Hediger 
Ovarian Cancer Patient Advocacy Program

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Pamela Johnson
Ovarian Cancer Advocacy Program

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Karen Ann Jones
Ovarian Cancer Clinical Trials Program

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Martha Conlon Robeck
Advocacy Program

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Melody Stockett-Beezley
Personalized Medicine/Ovarian Cancer Patient Advocacy Program

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Palliative Care

Judy Joseph
Palliative Care Program

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Pancreatic Cancer

The John Benske
Patient Advocacy Program

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Steven Braunstein
Molecular Early Detection Program

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The Carol Brull
Pancreatic Cancer Program

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Anthony N. Bua
Patient Advocacy Program

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Willard (Bill) Fisher
Pancreatic Clinical Trials Advocacy Program

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Jim Fling
Pancreatic Cancer Patient Advocacy Program

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Uri Harel
Therapeutic Arts Program

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Susan Leslie Heffron
Palliative Care Program

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Jeffrey C. Jeffers
Pancreatic Cancer Research Program

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The Phil Kurjan
Research Advocacy Program

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Dan Mears
Pancreatic Cancer Clinical Trials Program

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Jacob V. Noble 
Cancer Research Program

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Patient Safety

Mitzi Haramina 
Biologic Medicines and Biosimilars Patient Safety Program

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Pediatric Cancer

Kye Carpenter-Mark
Pediatric AML Program

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Stella Demarco
Neuroblastoma Program

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Xhevair Sulimani 
Rare Pediatric Cancer Program

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Primary Peritoneal Cancer

Beverlee Zell-Tamis, Ph.D.
Primary Peritoneal Carcinoma Program

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Prostate Cancer

Rodney Hardcastle
Survivors Program

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Kim Ian Madsen 
Prostate Cancer Program

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Poul Erik Nielsen 
Prostate Cancer Clinical Trials Advocacy Program

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Public Advocacy and Education

Sybil Erden 
Communications and Outreach Program

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Lydia Marie Hawkins 
Management Training and Leadership Development Program

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The Jeff and Lila Hauptman
Healthcare Access Program

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Linda Jenckes
Health Care Policy Program

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Brenna Lacey 
Information Technology Program

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Jewell McFarland Lewis, Ph.D. 
Philanthropic Advocacy Program

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Patricia B. and William H. Lyons
Physician-Patient Communications Program

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Rare Cancers

Maeve Carr
Rare Cancers Survivorship Program

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Herb Glicksman 
Program for Rare Cancers 

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The Larry Reed Guthrie
Rare Cancers Program

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Andy Martin
Rare Cancers Advocacy Program

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The Tuyen Nguyen
Rare Cancers Program

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The Adam Alabata Sanborn
Rare Gastrointestinal Cancers Program at ICAN

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Mary E. Schoenig 
Program for Rare Cancers

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Xhevair Sulimani 
Pediatric Cancer Patient Advocacy Program

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Renal Cell Carcinoma

Leslie F. Bell
Renal Cell Carcinoma Clinical Trials Program

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Rhabdomyosarcoma

Florence S. Heffron 
Rhabdomyosarcoma Patient Advocacy Program 

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Sarcoma

Carol Jean Zemba 
Sarcoma Patient Advocacy and Survivors Program

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Special Programs

The Gary Howell
Spiritual Counseling Program

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The Anna Riedel
Advocacy Program

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The Robert H. Tamis
BioDiagnostics Program

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The Suzette Winters
Molecular Modeling Program

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Special Programs in Biomarkers

Brenda Diener 
Lung Cancer Biomarkers Program 

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Carliser M. Rodriquez 
Gynecologic Oncology Biomarkers Program

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Survivorship Programs

The Paul Adam
Appendix Cancer Survivors Program

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Shari H. Baker
Breast Cancer Survivors Program

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Maeve Carr
Rare Cancers Survivorship Program

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Joni Gottlieb 
Breast Cancer Survivors Program 
(Patient Empowerment Tools)

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Rodney Hardcastle
Survivors Program

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Jayne Sanders
Survivorship Program at ICAN

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Sylvia Vizcaya-Alderson 
Breast Cancer Survivors Program 
(Bone Metastasis Issues)

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Carol Jean Zemba 
Sarcoma Patient Advocacy and Survivors Program

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Urothelial Carcinoma

John H. Palestrini 
Cancer Patient Advocacy Program

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Waldenström's Macroglobulinemia

Debra Shuman Berger 
Waldenström's Macroglobulinemia Patient Advocacy Program 

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Programs Honoring ICAN Volunteers

Doug Bartel 
Graphic Design Fellows Program 

...which annually bestows 
The Doug Bartel Award for Excellence in Graphic Design 

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Guidestar Platinum Seal of Transparency


Federal Tax I.D.: EIN 86-0818253